HIV and Families: Module 6 HOPE Resource Package

Relevant Websites

AIDS Meds
To tell or not to tell: disclosing your HIV status (2010).

The Body. U.S. Laws/news regarding HIV disclosure
Updated frequently to provide the most up to date information about laws and news regarding disclosure.

Counseling guidelines on disclosure of HIV status (PDF, 171KB).
Produced by Southern African AIDS Trust, this resource that offers practical guidance on specific issues relating to HIV and AIDS. This resource focuses on the disclosure process.

Disclosure of HIV to perinatally infected children and adolescents.
The National Guideline Clearinghouse offers a resource to help clients through the process of disclosure to adolescents.

Kidd, R., & Clay, S. (2003). Understanding and challenging HIV stigma: Toolkit for action. Washington, DC: International Center for Women (ICRW). (PDF, 9MB).

This toolkit is a collection of participatory educational exercises to raise awareness and promote action to challenge HIV stigma. Trainers can select from the exercises to plan their own courses for different target groups, including AIDS professionals and community groups. The aim is to help people at all levels understand stigma and develop strategies to challenge stigma and discrimination.

The Well Project
Disclosing your HIV status (2005)

Children and HIV/AIDS

Children Now 
Talking with kids about tough issues: HIV and AIDS.

CDC. AIDS prevention guide (PDF, 300KB) 
The facts about HIV prevention and AIDS – putting the facts to use.

Family-centered services for children affected by HIV and AIDS (PDF, 2004KB) 
Journal of International AIDS Society Supplemental Issue. 13(Suppl 2), SI.

The Family Ties Project
Group work with HIV/AIDS-affected children, adolescents, and adults: a curriculum guide (PDF, 630KB).

HIV Info Source
Children and HIV. Information for parents and providers.

Kids Health. HIV and AIDS
Has resources for parents, kids, and teens to discuss hard discussions.

Let's Talk: Children, Families, and HIV
Resources appropriate for children

The Well Project
Talking with your children about HIV:HIV awareness for children.

Women, Children, and HIV: Resources for Prevention and Treatment
Offers a great variety of resources and links about women, children, and HIV issues.

Teens

TeenAIDS-Peer Corps
Resources for teens to talk about HIV and other problems with their peers.

HIV and Schools

Health, Mental Health and Safety Guidelines for Schools
This site offers information about the universal precautions; blood borne pathogens for all schools.

Questions and answers for teachers about HIV issues in the school setting (PDF, 82KB).

The Nursing and Midwifery Council
This site provides confidentiality guidelines that must be followed by all school nurses.

Fathers

Fatherhood Institute
Fulfilling fatherhood: experiences of HIV positive fathers from around the World.

Family

AIDS Alliance: Children, Youth, and Family
A resource to give voice to the needs of women, children, youth, and families living with and affected by HIV and AIDS.

AIDS Policy Center for Children, Youth, and Families
Meeting the needs of children, youth, and families affected by HIV and AIDS through Medicaid managed care (PDF, 131KB).

Belsey, M.A. (2005). AIDS and the family: policy options for a crisis in family capital. New York, NY: United Nations. (PDF, 966KB).

The Family Acceptance Project
The Family Acceptance Project is the only community research, intervention, education and policy initiative that works to decrease major health and related risks for lesbian, gay, bisexual and transgender (LGBT) youth, such as suicide, substance abuse, HIV and homelessness – in the context of their families. They provide great resources and access to publications on the topic.

Family Health International
Includes a variety of downloadable PDF versions of books on AIDS care, AIDS as a chronic condition and testing.

Fathers Network
This site includes links that are related to the topics of family.

The Center for Grieving Children
The Center helps children grieving a death to heal and grow through their grief, while strengthening families, communities and professionals' understanding of how best to respond to their needs. Links and resources available.

The Journal of International AIDS Society
The Journal of International AIDS Society dedicated a supplemental publication on Family-centered services for children affected by HIV and AIDS. The Supplement contains reviews, opinions, and results from family-centered research approaches.

Richter, L. (2010). An introduction to family-centered services to children affected by HIV and AIDS. J of International AIDS Society, 13(Suppl 2), SI. (PDF, 160KB).

Kidd, R., & Clay, S. (2003). Understanding and challenging HIV stigma: Toolkit for action. Washington, DC: International Center for Women (ICRW). (PDF, 9MB).

This toolkit is a collection of participatory educational exercises to raise awareness and promote action to challenge HIV stigma. Trainers can select from the exercises to plan their own courses for different target groups, including AIDS professionals and community groups. The aim is to help people at all levels understand stigma and develop strategies to challenge stigma and discrimination.

McKay, M., Bell, C., Bhana, A., Petersen, I (2004). The CHAMP family-based HIV prevention approach: community collaboration as the foundation for international youth HIV prevention.

Results from the CHAMP program. McBride, C.K., Baptiste, D., Traube, D., Paikoff, R.L., Madison-Boyd, S., ...& McKay M.M. (2007). Family-based HIV prevention intervention: Child level results form the CHAMP family program. Soc Work Ment Health, 1(5), 203-220.

Housing

AIDS Housing of Washington
AIDS Housing of Washington (AHW) is a Seattle-based nonprofit that develops HIV/AIDS housing locally and provides technical assistance nationally.

Housing Opportunities for People with HIV/AIDS
The Office works with other HUD offices to ensure that all HUD programs and initiatives are responsive to the special needs of people with HIV/AIDS. One of the primary functions of the Office is to administer the Housing Opportunities for Persons with HIV/AIDS (HOPWA) program through providing guidance and oversight.

Housing Works
Resource and advocacy guide for homeless PLWHA.

Interagency Coalition on AIDS and Development
Offers a recently published (2010) resource about HIV, AIDS and housing issues (PDF, 352KB).

Wolitski, R.J., Kidder, D.P., & Fenton, K.A. (2007). HIV, homelessness, and public health: critical issues and a call for increased action. AIDS Behavior, 11, S167-S171. (PDF, 81KB).

Permanency Planning

The Center for Palliative Care Education
Resources on permanency planning with links.

Child Welfare Information Gateway
Resources for engaging parents in permanency planning

Child Welfare Information Gateway
Concurrent planning for permanency for children: summary of state laws. (PDF 298KB).

The Children's Trust Tadworth: For children with multiple disabilities
Information on leaving a legacy, making a will, and permanency planning.

The Family Ties Project

Grief and Dying

On Death and Dying
This website, created by David Kessler, is created for those dying, those who are in the process of dying, and those who will remain. The site targets many different age groups.

How to deliver care for people with HIV/AIDS and their families (dealing with death).

Crump, N.E. (2001). A lifetime guide to grief and bereavement. Shelton, CT: LifeCare, Inc. (PDF, 1.3KB)

Kersting, K. (2004). A new approach to complicated grief. Monitor Staff, 35(10), 51.

Kessler, D. (2010). The five stages of grief.

Kessler, D. (2010). On grief and grieving.

Shernoff, M. (1999). Dying Well: Counseling end stage clients with AIDS. Haworth Press.

Shernoff, M. (1996). Counseling end stage clients with AIDS. The Body.

Sikkema, K.J. Living beyond loss: an intervention for coping with HIV and HIV-related loss.

Oram, D., Bartholomew, K., & Landolt, M.A. (2004). Coping with Multiple AIDS-related loss among gay men. J of Gay and Lesbian Social Services, 16(2), 59-72. (PDF, 92KB).