Family Burden of Injury Interview

Construct: Parental impact of child’s traumatic head injury

Worried motherDescription of Measure: The Family Burden of Injury Interview (FBII) is a structured interview in which parents are asked to assess injury-related stress in a variety of domains which include child adjustment and behavior, relationship with spouse, impact on siblings, and relationships with other/extended family measures. Open-ended answers are coded Yes/No and are given a stress rating of 0 (not at all)-5(extremely stressful) by the administrator according to coding instructions for the measure. Parental responses are averaged to provide an index of injury-related family burden. Questions concern 3 areas: 1.) child’s recovery and adjustment, 2.) reactions of extended family and friends, and 3.) spouse’s reactions Reliability and validity are well-established (see below).

  • Developed in 1999
  • Designed for use with parents of school-age children who have suffered a traumatic head injury. Parents complete the measure.
  • 31 items
  • Time frame to complete is 20 minutes
  • Response format: Open-ended answer
  • Item examples: “Are you concerned about your child’s recovery from the injury, or about any possible problems related to the injury in the future?”; “Have any long term goals been affected by the injury or any consequences of the injury, such as career, financial, recreational or educational goals (yours, your spouse’s, the family’s)?”
  • Subscales: Child, Spouse, Others, Siblings, Family Routines/Planning
  • Languages: Dutch, German, Danish
  • Reliability and validity: Cronbach’s alpha were .90 or the original item version with split-half reliability of .80. Test-retest at 6 and 12 months showed moderate correlations of r=.64 between baseline and 6 months post-injury, r=.52 for scores between baseline and 12 months and r=.73 between 6-month and 12-month scores. Scores on the FBII were correlated with maternal distress (GSI scores on the BSI) (r=.36 at baseline, r=.42 at 6 months and r=.47 at 12 months. Similarly, the FBII correlated with scores on the Impact on Family Scale, version G. Mothers of children with severe head injury (as measured by the Glasgow Coma Scale) had higher FBII scores than mothers of moderately-severely injured children. Scores on the FBII were significantly correlated in the validation study also with family functioning and with child outcomes (CBCL and a measure of PTSD tology). FBII scores were most predictive on regression analyes of child PTSD symptoms and negative family impact. (Burgess, Drotar, Taylor, Wade, Stancin, & Yeates, 1999) 
  • Important normative samples: 99 mothers of school-age children with initial post-resuscitation Glasgow Coma Scale scores between 9 and 12 or a higher Glasgow Coma Scale score when there is proven abnormality on a CT scan or neurological examination.

To obtain the instrument: Dr. Shari Wade, e-mail

References

Burgess, E., Drotar, D., Taylor H.G., Wade, S., Stancin, T.,Yeates, K.O., 1999. The Family Burden of Injury Interview: Reliability and Validity Studies. Journal of Head Trauma Rehabilitation, 14, 394-405.

Stancin, T., Wade, S.I., Nicolay, C.W., Yeates, K.O., Taylor, H.G. (2008). Traumatic brain injury in early childhood: Initial impact on the family. Journal of Developmental & Behavioral Pediatrics, 29:253-261.

Stancin, T., Wade, S.L., Walz, N.C., Yeates, K.O., & Taylor, H.G. (2010). Family adaptation 18 months following traumatic brain injury in early childhood. Journal of Developmental and Behavioral Pediatrics, 31, 317-325.

Wade, S.L., Walz, N.C., Taylor, H.G., Stancin, T., & Yeates, K.O. (2010). Caregiver functioning following early childhood TBI: Do moms and dads respond differently? Neurorehabilitation, 27, 63-72.